Deja vu

Well here we are in the same place as we were a year ago in the hospital!! He got home Friday from camp looked good made sure he did a good shower with hibiclens, washed everything in hot water, made him a good meal and sent him to bed early! Woke up Saturday about 11am which I thought wow good sleep.. he was complaining that he was cold but his face was bright red so checked his temp 99.7 for him that's low grade so gave him some Motrin and made him some food and gave him a drink. Things were going good until about 3:30pm. He was hot again and the fever had not budged and when I looked at his thumb it was brown. His dad and I decided that I better take him in because he can get worse so quick and figured get it cultured while there was still fluid in it and just get a quick first dose of IV's. Said by to the girls and off we went! Got to the ER had the worst triage nurse ever!!! Pretty much accused me of waiting a week to bring my son who had burns because he never heard of EB!!! I'll get into that later!!!! Got him in a room waited 2 hours for the doctor who didn't know a thing so I told him what we needed to do and gave my lesson on EB. Well by now Jonathon was not feeling too good. The nurse came in and cultured and the fluid was a yucky brownish green it was so gross and smelly, I have never seen it that color! After sticking him 3 times finally got a IV started and did some labs. I asked the nurse to check his temp cause he wasn't looking so good..103.7..WOW what the F*** I thought that is not good. They gave him 600mg of Motrin. Two hours later he was still very hot starting to shake so, I called the nurse and she re checked it only down to 103...gave him 1000mg of Tylenol and we just prayed it would start going down. Thank god my sister was with me cause honestly I don't show much emotion and don't like to in front of Jonathon cause I don't want to scare him but, I was scared. You feel so helpless as a parent and to sit and see your child in pain, body shaking, and him moaning cause he feels like shit and to know there is NOTHING you can do! The only thing I could do was keep a cold compress on his head. He was so hot I could of fried an egg on his forehead! But, having my sister there felt like I wasn't alone and needed to stay strong for him! About a hour after they started his antibiotic and told me they were going to admit him. Got up to our room oddly the same one as last year. Finally got him to bed about 12:30am. Didn't sleep so well he kept waking up feeling like he was going to be sick and between the nurse checking his vitals what seemed like every hour. We are now just waiting for the doctor who had a emergency. fever this morning is 100.9 only had to do Motrin but they are starting to worry about his kidneys because he is on IV fluids and drinking Gatorade but output is half of what they expected so, just trying to stay positive and pray that it's just the antibiotic messing things up!!! Hopefully we will know soon what's going on! Good note he was able to walk around gotta keep the blood flowing :)