Friday, December 7, 2012

Just a little update 🎅

As I sit here and write, erase, rewrite, and you get the point....I have so much to say but just really not sure how to put it all in to making sense!!! So for now I will just update:

Jonathon: Is doing ok....he is having a lot of foot pain and to the point were he isn't even going outside (which is not like him at all) hopefully it is nothing serious. He goes for his physical this week so, we will talk to her for now is all I can do is keep his pain under control and try to keep him happy!! It has been making him a little depressed which I hate to see him down!! School has been going good for him. We have been working closely with the behaviorist and a few other people. So, things have been going well with all of that.

Ariana: school for her is going good. Her sensory issues have been up and down lately we have been having a lot more melt downs but it also a crazy time of the year. As much as I try to keep everyday a routine and try really hard to not have a unwanted change but somedays are not that easy. I have found some really good things to help us but, not everyday can be perfect.

Ellie: she is finally getting better her asthma was way out of control. We have had to add another treatment for her everyday. She is loving school and taking the bus! I can not believe she will be 5 next year and in kindergarten!!

Now me: I don't even know were to begin on that!! I am going through a lot of medical tests to figure out what is really going on...I am so frustrated that they can not figure out what is going on I'm just tired of tests and doctors appointments! I will be getting a second opinion since no one else can figure it out.

I am happy to share that Jonathon and I will be going to Utah for the ski retreat we leave December 28th and come home the 1st! We are both so excited, I can't wait to meet and talk with other EB moms and for Jonathon to get to meet others with EB! This is going to be so exciting 😄

Our Thanksgiving,