Jonathon's birthday

I have wanted to post this earlier but, with everything going on was not able to: My post from Face book on Jonathon Birthday August 7 2012.

13 years ago today my life was about to change for ever. I was about to have my first child. Nothing could have prepared me for what my family was about to go through. Everything about you was perfect your beautiful blue eyes, long fingers you were the perfect size 7lbs 7oz. We brought you home and adjusted to finally having you home. Then at five days old who would of thought that this blister on...your heal was about to change our family and lives forever!!!! At first nobody had any idea what the hell was going on we were frustrated, angry, mad, why us were all the questions we asked!! I felt alone how were we going to get through this what the hell did Epidermolysis Bullosa mean??? The doctor only told me never to have more kids and prepare that he would not make it to the age of 5. His Dad and I left that appointment looked at each other and said who the hell is he to put a age to our child? I was so lost had no idea what all this meant. went to the library and started researching EB and there was not that much found a few websites with info that kept me optimistic!!!! We had decided never to see that doctor again!! Fast forward to today and you have done nothing but teach me about life and to take each day slow and appreciate the little things. You have bloomed into a incredible young man with awesome hopes and dreams that I can not wait to see you accomplish. Happy birthday Jonathon I love you so much and am so proud of you you have become and how much you have taught all of us!! You have done so much and I could never or would never change a thing you are just as perfect today as you were 13 years ago ♥

 

I have to say a special Thank you to IcingSmiles for making his day truly awesome!! I have never seen him smile so much and, for Chickdee Hill Cakes in NH for making it possible with there awesome birthday cake.  We thank you from the bottom of our hearts for making a milestone so, special for Jonathon you guys ROCK!!!!!

A little of this...A little of that

Well Hello everyone, I know I promised I would update on what was going on with Jonathon while we were in the hospital but, I never got the chance too!! Here is a update.

Well finally the infection cleared up it did end up being MRSA so, they had to switch his antibiotic to Bactrim.  Then we had school start so, I had to get everyone ready for the first day which almost did not happen for a certain someone.  Jonathon insisted that he wanted a motor scooter for his birthday so, I told him if he saved the money he could get one.  Well he just had his birthday and ended up getting enough to get it on his own.  I was very nervous but I let him get it.  Well Monday evening last week I get a phone call with him screaming "I fell I fell" his dad can hear it on the phone and before I can say anything runs down the street. I told Jonathon his Dad was on the way and I waited outside.  I could hear him screaming from up the street so, I new this was not going to be good then he gets in view and oh my word his hands were no longer together. He came up stairs and he was shaking so bad and screaming and crying.  I immediately sat him on the couch got him a cold cloth and his wonderful awesome sister bless her heart got him a cold drink.  I looked over his body to make sure that there wasn't something else that I could not see cause he was covered in blood. The only other injury was a little bit of skin was off his knee.  I knew that I need to get him some pain medication cause Motrin was not going to help this so, I called his PCP and she told me just go to the ER.  Which we did not want to do but if it was going to help him then we needed to.  His dad helped him into the car and off we went.  Let me tell you this place was so busy and they kept telling me we needed to wait, I'm sorry but this was not your average cold so, we were not going to sit and wait!!!  Within a few minutes we were in there and he had some medication and finally started to calm down.  They soaked his hands and put the skin back over the area and just wrapped it for him.  He was miserable I hated seeing him like that and it was the first time I have broke down crying in front of him.  It is the worst I have ever seen him.  He was a trooper though came home and the next day went to his first day of school.  Even though it ended being half a day for him cause we needed to have a follow up at the PCP he still did it!!

First day of school went off great besides the above.  Ariana was so nervous about starting cause she did not know what to expect but, she did great.  She came home and said I don't know what I was so nervous for.  Ellie will start on September 26 and I start this Wednesday the 5th.  Yes you read that right I am starting school.  After being laid off from Emmaus I realized that I need a different career choice so, I am doing hybrid classes here at NECCO for my associates in Health care with my minor in Medical coding.  I will only go to class one day a week and the rest of the work will be done online which is exactly what I need.  Everything else is going OK!!

 

His hands after he fell

His hands after the hospital fixed them

His knee

Jonathon with his cat Princess she never leaves his side when something is going on!

              The first day of school. I got half a smile but, for how much pain he was in its ok!

His hand on 9/2/12

His hand 9/2/12